How I feel About Celiac and everything else

I have an older brother and it took 6 years to train him to read labels and learn what I avoid. Is it because he is a man? I have female friends who get it! (thanks besties) and then I have friends who are beyond oblivious. My favorite is when they presume simply because a menu says “Gluten Free” it is safe, WRONG.I will give you an example

A restaurant where I know the owners and ate at with my family for years before being diagnosed starting jumping on the money-making bandwagon called “gluten-free” to make money without proper training and have essentially poisoned any celiac not smart enough to ask the right questions.

I ask the right questions, I have Celiac Logic, which is, presume they don’t know because they don’t suffer the consequence.

TURNS OUT they cook the gluten free pasta they offer in the SAME WATER AS THE GLUTEN PASTA.

It is simple things like this that can make a Celiac or even the gluten intolerant sick.

Now, using the example above

a co-worker, a friend, a significant other can unknowingly make the Celiac in their life gravely ill by not being educated about proper practices and how many places cut corners or don’t care or have in this case cross contaminated kitchens and food offerings.

ALWAYS STAND UP FOR YOURSELF or wind up with bowel cancer from silent damage……it is that serious. Know that you will ALWAYS encounter people who don’t want to hear about your Celiac Disease, will not care about it, don’t want to hear you ask questions to protect yourself. I say, OH WELL, ALWAYS ASK questions, always trust your gut, and never eat anything you are not 100% sure is safe!

Celiac Disease does not only affect the individual, it affects family, friends, boyfriends, girlfriends, and co-workers.
While being a Celiac is definitely not a great thing, it is also frustrating and confusing for those who we engage with (unless a fellow celiac). You can feel ostracized and depressed or afraid to eat because you know what being sick (glutened) feels like.
I am fortunate to have the mother I have, as if it were not for her, I would be dead most likely from either a bad doctor or disease.
I was a pin cushion for over 8 years and it took my mother reading an article to get me to my Celiac Disease Diagnosis. Then I got misdiagnosed (doctor nearly killed me, I was in bed for months) and then DNA tests diagnosed me again lol.
The most important thing I can impart to anyone dealing with a Celiac Disease, gluten intolerance or allergy diagnosis. You will still be a celiac tomorrow but every day gets a bit easier in terms of people being educated and food options. You are not alone, even though you may feel suicidal thinking about all the food you can’t eat and the pain you are going through BUT you are not alone. No pun intended, always trust your GUT!!!! If you feel your doctor is not doing what is in your best interest or tells you they don’t believe in gluten or celiac disease (which happened several times but I will get into that later) TRUST YOUR GUT find a new Dr. and be your own advocate because even if you have a mother like mine, you are alone in this fight because you are your first line of defense, always. It also helps to have a really good best friend who understands and will listen to you complain lol
Signed with love, hope, and hugs
Jesse, The Celiac Woman
“my body wasn’t built on lettuce, it was poisoned by gluten for years BUT I learned to make anything Gluten Free and allergen-free taste good SO CAN YOU!!!!!!!!!”

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Hello World, Celiac and Non-Celiac :)